Date for Nephrectomy

I had an appointment with my surgeon yesterday and my fistula is ready for action or should be fine in a week or so. Thus they have decided to get some planned dates for the next step and my biggest operation.

We are planning to complete my bilateral nephrectomy at the end of September / beginning of October, depending on holidays and emergencies.

All getting very close now!

No posts for a while as ive been a bit off form. Last Wednesday started to get a severe pain in my Left hand side, ended up in the renal assessment center for bloods and tests. Ended up there for most of the evening until they let me go. Looks like I had a Cyst burst.

On Friday this was confirmed as I had blood in my urine, which got worse over the weekend and has only just stopped today.

Ive got at appointment at the QE tomorrow with the consultant to see if I can use my fistula yet, if so its op time. If not just a waiting game.

Fistula Update

Saw a nurse at the renal outpatients today and apparently the fistula seems to be working well, the vein is still a little "delicate" but is working well. So that's good news.

Oddly it seems to stop buzzing at night but is still making a pumping sound! strange these fistulas!

Injury!

well did a good one this weekend, managed to injure myself somehow, and strained my side, feels like a muscle pull, no blood showing so should be OK.

Getting a little concerned about my levels now as i seem to get tired very quickly, Ive been into the hospital today for some blood work as i need to know if i am falling quicker than I thought. Generally very tired in the mornings and struggling to do physical things i have before.

Feeling a little unwell

I guess things do sometimes get on top of me, yesterday I spent sometime in the garden after work and paid for it. Last night i felt quite ill and very lightheaded. Im not eating much at the moment as I simply don't have any room (kidneys taking up all the room now).

I'm thinking that the lack of food and overexertion just took it out of me. Felt better this morning but still quite tired. Many people have told me that when you have PKD you don't often know how ill you actually are, and Ive been trying to deny that im ill for the last 2 years.

Ive got an appointment later in the month to check the fistula before dialysis, im hoping my levels havent dropped anymore!

fistula is humming away, no idea if its right but presume should be OK. Got an appointment with the surgeon on the 27th of this month so expecting to get a date for my nephrectomy.

I did get some results last week and noticed my creatinine level is 474 which is actually lower than last time when t was 524. Its been up and down a lot recently but hovering just above dialysis level.

Had my stitches out now and I think I can feel the vein getting larger in my arm.

Mums Tests

My mum has also now found out from the Nephrologist that she is a good donor and that they are now happy after all the tests that she is fine as a donor. Fit and well. That's good news for us both and I'm especially pleased that my mum has a good fitness level, whatever happens with me.

Psychotherapist

Now had my assessment for suitability with the Psychotherapist. Basically to make sure I understand what I'm doing and that I am actually my mothers son!. Passed and not quite psychotic - yet!